C/O 60 Frederick Road
Bridgwater
Somerset
TA6 4NG
United Kingdom

NB: this is a forwarding address for the Pal, we do NOT disclose home addresses

Email Pal

Keeleigh R's Parents/Guardians

Tracy

Keeleigh R's Siblings

Klaiton 28/04/02 He is autistic but loves music.

Keeleigh R's Interests

Horses, art, computers, music, playing games with her brother, reading, cooking, make-up and making things.

Keeleigh R's Favourite Colour

Purple

Is Keeleigh R able to read?

Yes

Is Keeleigh R able to use hands?

Yes

Is Keeleigh R visually/hearing impaired?

No

Does Keeleigh R suffer from any developmental delay?

No

Things not to send?

Chocolate

Story written 2011

Keeleigh was diagnosed at age 2 with kidney and liver disease. We were told that she would need a combined kidney and liver transplant by the time that she reached age 8. She shocked all the specialists and continued to do really well. We have now reached the point, age 12, where she needs her combined kidney/liver transplant. She is on the transplant list and we are just hoping that the call comes soon.

Keeleigh is a very strong willed person and always has the attitude of not letting her illness beat her. She is fully aware of what is happening and what is going to happen and still all she says is “Mummy, I’m going to get through this as I love you, Daddy and Klaiton so much, I don’t want to see you all worry anymore and when I’m better I’m going to be the best daughter and big sister in the world.”

I know my little girl is a fighter and she will beat this. Her kidneys are only functioning at 16% now and yet she still hasn’t started dialysis. Fingers crossed her transplant comes before she needs to start dialysis.

Update 21st February 2012

Keeleigh went to theatre today and all went well. She’s back on the ward eating and drinking. She did have a bit of a wobble but is fine now and hoping to be home in the next few days if the bloods and scan is better tomorrow.

Update 19th February 2012

Keeleigh is back in hospital; the stent that was fitted during transplant has slipped and is causing some swelling inside the kidney. She has also picked up an infection and so she is going to theatre tomorrow to have the stent removed and they are hoping this will improve the kidney function. The infection is slowly working itself out and they hope to see her white blood cells improve over the next few days as they are very low. If they don’t see any improvements in the next few days they will be transferring her back to Birmingham. She is feeling very down at the moment and fed up as she is on strict isolation due to infection risk.

Update December 2011

Keeleigh has had her transplant! She is now back home but the recovery is a long road.

Update 16th May 2011

Keeleigh has been back to the hospital today and we have been told that she will go live on the transplant list for kidney/liver today. They hope that we won’t be waiting too long (they say around 12 weeks is the average). I will keep you all updated and thank you for her cards that have been making her smile.

Update 12th May 2011

Keeleigh went to the hospital again yesterday, she had bloods done and her kidney function has deteriorated further. She is going to Birmingham children’s hospital on Monday so hopefully there will be no further decline.

Keeleigh was also taken to hospital this afternoon after having a nasty fall. They are unsure if she has broken her nose as she has a black eye and a lot of bruising to her forehead and cheek bone. They said they can’t tell if she’s broken it until the swelling goes down. She is feeling very down now as they have advised me to keep her off school.