Our Pal Jordan H
Easy remember link: http://www.postpals.co.uk/pals/Jordan+H
Quick Link: Jordan H's Story
| Born | 19/09/1996 |
|---|---|
| Illness | Common Variable Immune Deficiency |
| Status | Current |
| Home Page |
Address: - READ SAFETY
Little Hulton
Worsley
Manchester
Lancashire
M38 9GN
United Kingdom
NB: this is a forwarding address for the Pal, we do NOT disclose home addresses
Email - READ SAFETY
Other Information
- Jordan H's Parents/Guardians
- Gary and Lesley
- Jordan H's Siblings
- Chloe (adult)
- Jordan H's Interests
- Drawing, colouring, football, playing PS2 games, space, astronauts, the solar system, magic tricks, jigsaws, puzzle balls
- Jordan H's Favourite Colour
- unknown
- Is Jordan H able to read?
- Yes
- Is Jordan H able to use hands?
- Yes
- Is Jordan H visually/hearing impaired?
- No
- Does Jordan H suffer from any developmental delay?
- No
- Favourite type of post?
- Postcards
Jordan H's Story
Story written 2007
Jordan was diagnosed at 2 years old with an immune deficiency. This was after being ill from 3 months old with recurrent chest, ear and throat infections. He was admitted to Pendlbury Children’s Hospital frequently under the care of a Haematologist but referred to an Immunologist from
After 6 months,
At Christmas 2005, he had Epstein Barr at a chronic level and this was when the doctors decided he needed to go back on treatment. It took 6 months of waiting and being covered with antibiotics to get the treatment he needed. Currently
Update 11th August 2011
Jordan hasn’t been very well over the last few months. He is having a trial off treatments and is dependant on prophylaxis antibiotics. Although he is covered by these, he is having quite a few breakthrough infections. Most are chest infections and the latest one required hospital treatment which Jordan was less than impressed with. He has been given an earlier appointment with the consultant and we hope to have some news in the near future.
Jordan is very quiet at the moment and is spending most of his time in his bedroom so any post he gets is really appreciated and cheers him up. I would like to thank all the people who send post to Jordan, as however small, it really does brighten his day. People do not realize the impact a sick child can have on family life and things can change so quickly from day to day without any warning. Thank you to anyone who has sent post to Jordan, it really does make a difference.
Update 12th April 2011
Jordan has had quite a few infections and viruses over the last two months, mainly chest and throat infections, each requiring visits to the local out of hours GP and receiving antibiotics to treat him.
Jordan is quite withdrawn at the moment as he doesn’t like people fussing over him. We are hoping to get an appointment with the consultant quite soon.
We would like to say a big thank you to everyone who has sent post to Jordan and Chloe, especially Helen Breirley. We had to go and collect the parcel from the sorting office as it had been returned once and was just about to be returned again. Also, thank you to a very kind man (sorry I have misplaced the letter attached to it) for the remote control helicopter. Jordan also received a beautiful book on birds of prey which he has been really
interested in. Thank you all the Sunday School children who have sent lovely letters and pictures too, Jordan now has a drawer full of cards and pictures.
Thanks to everyone at Post Pals for doing such a wonderful job, it really is appreciated.
Update 31st January 2011
Jordan received some lovely post over Christmas and in January, some of which was delayed due to the bad weather. He received some great gadgets and models to do from the science museum, unfortunately there was no name on the parcel, so whoever you are, thank you. As always, a big thank you to Despina, Helen and Kate. Also, a big thank you to everyone that sent cards and post over the Christmas period.
Jordan has been quite unsettled for the past few months, contracting lots of viruses. He also had a really bad chest infection and needed treatment for two weeks. Since then he has had a bad ear infection also requiring antibiotics. This is what we expect as he has been taken off sub cut infusions and put on high dose prophalaxis antibiotics as a trial. We see the consultant in March and are hoping they might put him back on infusions although Jordan isn’t really in favour of this.
Once again, a big thank you to everyone who has sent post to Jordan, its really appreciated.
Update 30th August 2010
Jordan has had quite a good month with just a slight virus. He is currently on a new medication which is for a trial period. We are due to see the consultant again next month but have been pre warned that his immune system could become resistant to the new medication.
Jordan is looking forward to going back to school and Chloe is hoping to start at college, but with her current mental health state this is looking more like she may have to postpone this.
Thank you to everyone who has sent post, Jordan received an optical illusion 3d jigsaw puzzle which was great but he has mislaid the packaging it came in and this had the kind persons details on, so whoever you are, thank you very much. Also, thank you Ria for Jordan’s pillowcase, it is totally amazing. I will upload the photo as soon as I take one - Jordan is not being very cooperative right now! Thank you again to everyone who sends post, it really is appreciated.
Update 17th June 2010
Sorry for the delay in updating, we have been really busy as my Nana (who is very old) has been really poorly.
Jordan has had another 2 chest infections over the past 2 months (meaning 4 already this year) and a throat infection. He had some blood work done in May, which told us that most of his IG levels were fine but IG2 is very low. This is the specific antibody that fights chest, throat, ear infections and some other more serious infections. Due to this, it has been decided that Jordan will now have a high dose of prophalytic antibiotics 3 times a week, and he will be monitored to see if this can improve his condition.
Jordan is enjoying the football and following the world cup hoping England do well.
We would like to thank everybody who has sent post to both Jordan and Chloe. Especially Helen, Kate Dee, Claire who sends a card every month. We would also like to thank the school teacher Helen who sent Jordan a beautiful book about the universe; he was really pleased with this and is getting a good collection of books about the planets and universe. Also, Chloe received some bath accessories from Lush which smelt lovely. It really is appreciated, thank you.
Update 2nd February 2010
Sorry it has taken us so long to reply, we had a problem with our emails.
Jordan had a lovely Christmas and New Year. We had relatives from Canada to stay so it made it extra special.
Both Jordan and Chloe received an awful lot of mail over Christmas and this we are very grateful for.
Jordan has had another chest infection and is suffering from migraines, but on the whole he is doing quite well.
Chloe has had a few assessments done and it has been noticed she has moderate learning difficulties and quite severe mental health problems. She started a special school in January and she seems to have settled well, but it’s her final year and we feel she has been let down with her education and the way she’s been treated.
We would like to thank everyone who has sent post to both Chloe and Jordan, especially Helen Brierley, the Hamberg family, Martin Jackie and Jamie, Benjamin Taylor, Kate Dee, Sarah G, Debbie, Wendy, Jane, Elf Lynn and the other Christmas elf who didn’t leave their name. Thank you everyone, it is really appreciated.
Here’s hoping to a happy and healthy 2010.
Update 30th November 2009
Jordan has had his treatment reduced to monthly and this is proving quite difficult at the moment. He has had the flu virus which required tami-flu antivirals, and subsequently has had a re-occurring chest and throat infection. After a trip last week to the local children’s A&E department, Jordan is now on yet another course of antibiotics. We are hoping this will knock the infection back, but up to now there are no signs of this irritating cough relenting. Jordan is quite cheerful in himself and is enjoying the time spent in bed on his x-box. We are hoping to get some up to date blood tests very soon, and this will shed some light as to whether or not to increase his medication.
Jordan is looking forward to Christmas and we would like to thank everyone who has sent post to both Jordan and Chloe throughout the year. Especially Maria, Kate Dee, Julia Barret and all the other regulars. Also, a big thank you to everyone who has sent Jordan postcards from all over the world as he now has a lovely collection. A special thanks to Viks and Post Pals, without you none of this would put a smile on a poorly child’s face. Thank you. Wishing everyone a very Merry Christmas and a Happy New Year.
Update 1st October 2009
Jordan received birthday cards from Post Pals and he really appreciated the home made ones. We would like to thank everyone who sent Jordan post for his birthday. We would like to thank everyone who sends post to both Jordan and Chloe, it is really appreciated. Thank you.
Jordan had had his treatment reduced, but unfortunately is now starting to pick up more frequent infections. He has had 3 chest infections in the last month. It is likely he will have his treatment upped again.
He has also been seen by the orthopaedic specialist about the pain and swelling in his knees. He is now restricted again in the activities he is able to do.
Update 10th August 2009
Jordan has been quite well over the last few months with minimal infections, so the immunologist has decided to reduce his infusions even more. Good news for Jordan, but we now have to be extra vigilant. Jordan already has a nasty infection in his elbow after falling on it and it now has a rather large lump on the inside of his arm, so a trip to the GP is needed.
Jordan also has a referral to the orthopedic specialist later this month as he is having major problems with his knees. The advice given for now is plenty of rest and no sports or physical activities which is proving rather difficult with it being the school holidays.
Anyway, a big thank you to everyone who has sent post to both Jordan and Chloe. Jordan has received a lot of post from Salt Lake City and thank you to the lady who sent him the wooden puzzle of a dinosaur (it is now securely glued together and is taking pride of place on our fireplace). Thanks also to Viks for the moonpig card as Jordan is thrilled with this one.
Once again, thank you to everyone who sends post to both children. It is most appreciated, especially when this restless boy wants to be out and about, but cannot exert himself as much as his friends.
Update 4th May 2009
Jordan has been a little unwell over the past weeks. Firstly we had a chicken pox scare which meant a visit to the local children’s A&E department. We were seen by two doctors here and the first said it was unlikely to be the chicken pox, but the second said it was as it presents differently in children with immune deficiency.
We then had to go back again with a different problem as
I would like to thank everybody for the cards and gifts that both Jordan and Chloe have received over Easter and the last month.
Update 10th March 2009
We would like to thank everyone who has sent post to both Jordan and Chloe.
Update 2nd February 2009
Both Jordan and Chloe have been unwell over Christmas and throughout January with a reoccurring flu virus.
We have a lot of people to thank for the post received over Christmas. Both children received boxes from elves and there was also a stack of cards and more gifts. Thank you to Dani for Chloe’s box and also to Maria and Michael for her other box.
I would like to say a big thank you to everyone who has sent post all year as it means so much to see a smile on their faces when they receive post. Thank you all.
Update 29th November 2008
Thank you to everyone who has sent post to both Jordan and Chloe over the past year, especially Jenn, Helen, Dorothy, Julie Barrett, and St Mathews Sunday School. Thanks also to Viks and Post Pals itself.
I hope you all have a great Christmas and a happy and healthy new year.
Update 3rd November 2008
Although he has been quite well infection wise, he is still having problems with his bowels and has had his medication upped again. He is now taking an extra 3 tablets at night which he isn’t very happy about.
He is due for a review with the paediatrician very soon and also with the immunologist at the end of November.
We would like to thank everyone who continues to send post to both Jordan and Chloe, especially St Mathews Sunday School. Thanks also to Post Pals for the parcel for each of them,
Update 23rd September 2008
He has just started at secondary school which seemed rather daunting but he seems to have settled really well and we hope he continues to be happy here.
Finally, thank you to everyone who has sent him cards, letters and gifts, however small. They mean a great deal to
Update 31st July 2008
It has been quite a busy time for us.
Over the last month
We would like to thank everyone who has sent post to either Jordan or his sister Chloe. Especially to Dorothy, who has sent some lovely cards and notelets and some make up for Chloe which she was really pleased with. Thank you also to Jenn who never fails to send
Update 2nd June 2008
Many thanks to Jenn who has sent post to
Update 1st April 2008
We would like to send a big thank you to Jade for sending Jordan a 20 questions funball - we have all had hours of fun with it! It really is amazing and thank you Jade for Chloe’s nail set too. We would also like to thank Sally for her funny vicious veg note pad and pen and also her postcard.
Update 9th March 2008
We would like to say a big thank you to Julie Barret who never fails to send something to cheer
Update 30th January 2008
We would like to thank anyone who has sent
Update 20th January 2008
Last week we got the results of some of
I would like to thank a young girl called Lauren who has recently started writing to
Update 3rd January 2008
We would like to thank Despina for her lovely Christmas card from the
Update 2nd December 2007
Update 28th October 2007
I would like to thank everyone who has sent
Update 24th September 2007
Update 7th August 2007
Update 7th July 2007
We have just got back from
We would like to thank everyone who has sent post to Jordan, especially Julie Barret. He really likes the postcards he receives and now has a special place where he keeps them all.
Update 9th May 2007
Jordan had his appointment brought forward as he was suffering from lots of itchy hives which were making him really miserable. The immunologist has said it is utucaria and can affect some people with immune problems. He has now been put on some new medication which he has to take daily.
Update 7th April 2007
Jordan had a few infections and viruses throughout February and March. It started with him catching gastric flu and this left him feeling rather low and fed up. He was just getting over this when he got a chest infection and had to be on antibiotics for 10 days. He seemed to pick up nicely after this, but was knocked back again by an infection in his stomach from his infusion site. This left him feeling very sore, but if you asked him,


















